Sometimes reading about other's struggles is a good idea. I was just on planetcancer's forums, lurking as it were, and reading about those who are in remission, and have been for quite some time, and thinking "yes, that could be me." Only, just as often, I find myself staring at the words that have come to haunt me: "this is dedicated to (his/her/their) memory." My stomach drops, tears well up behind my eyes, and the sadness sets in. Because it's a reality. I try to act like I'm not living with cancer; the disease has been eradicated from my body and there are no more remnants of it to be found. But then I think, no, it's still there, waiting for a moment when I let down my guard, when I'm happy again, just to come back and take me down again. I pray that my name is never in that empty slot of "Dedicated in loving memory. She left us too soon." And soon means young. Before I have time to lament about crow's feet and kids. Before I can receive an invitation to my tenth high school reunion; and promptly turn it down. Before I can bitch about gravity doing a number on my body and how my eyesight is failing and that things sure ain't what they used to be. Before I can get married and have a house on the beach and stare at the ocean while on a swinging on a hammock. Before I can learn to surf or mountain climb or go to an exotic island. Before I can buy my own car and not have to worry about the payments because I actually saved enough. Before I can forgive myself for whatever mistakes I've been able to make in the short time I've been an actual adult.
I try not to give my fears any voice. Because it feels like if I say it, it makes it true. Which means that if I say "It's not coming back" that will make that true, but for some reason it never seems to work like that. It doesn't mean that I live everyday waiting for the other shoe to drop. That I'm not "Staying Positive" (see cliche post). It just means that there are moments when the idea of death, of dying, of having an epitaph comes and sits next to me. But I once told my father "You can't live your life afraid of dying." And that's what I tell myself when these nagging thoughts come to play mind games. And sometimes I'll take an Atavan to make sure that I can make it through. But just as often, those words are all I need to remember that all those things I mentioned above are still within my reality.
Dealing with non-hodgkins lymphoma--chemo, radiation, baldness, wellness and everything in between. Something of a quarter-life crisis
Wednesday, May 19, 2004
Tuesday, May 18, 2004
Well, same day but two different posts. The surgery went very well; apparently the post I had from yesterday didn't go through and well....here we are. I am very sore right now but so very happy. Not from the Vicadin (which I always spell wrong I think) either. It was everything that was to be expected; got there at 7 and as soon as we walked in there was a woman behind the counter waiting. I walked over. She looked up at me for a split second before lowering her head. I said my name and she didn't acknowledge me with her eyes, or a smile, just a "yeah." Sign this, mark here, insurance card please, sit there and we'll call you. All without making eye contact once. Pretty impressive. I really like that the people that they have behind the desk welcoming people before they go under the knife is so pleasant.
And then the waiting. I'm convinced that if I added up all the times I've waited in the past nine months, I could get a whole three days back. Walked into the back room ; my mother came with me. She's a nurse at that hospital, so everyone addresses her instead of addressing me. Half the time they think I'm 16. It's actually really annoying. Not that I mind my mother speaking up and giving information that I may have left out, but I do mind when they speak with her instead of me as if I'm incapable of giving an accurate recount of my health history. But eventually I tell them to please direct their questions to me and they respect that although they do sometimes think it makes me a little difficult.
Then you have to take the pregnancy test. Now, since all that has happened to my body, they tell me my chances for getting pregnant at some point in the future may be the same odds as the Bills winning a superbowl. However, and without fail, every time they hand me the illustrious cup to pee in, a nurse must tell me the story of how her friend/sister/neighbor/cousin/coworker/friendssister'sneighbr'scousin'scoworker also had cancer and low and behold now she's got three kids. It's very sweet; but funny because everyone does it. Plus at this point in time I'm like--uh, no kids is fine by me!
Then the inevitable IV for the anesthesia to come later. I always tell my mother she can not come to recovery until I am completely coherent. I do not need her asking me about whatever questions she has about my teenage and early college years. Or now even. Not that she would, but I would think that it would be tempting for a parent to find out exactly how many parties were held in their home. I remember one time my friend L and I both told our parents we were staying with the other one for a week. And then both sets of parents went away. I'm lame and wouldn't let anything happen to their house but sure had fun with the freedom at L's house. :-) Well, she didn't even need to ask me under anesthesia. She could just read this.
Then you walk down the hallway. Now you only have those horrid hospital robes on and you have to take off one of them. So trying to maintain your dignity is a little hard, clutching the back and lying down on the table to make sure nothing is showing. Because in five minutes while you might be lit up like a Christmas tree and not care, at that moment you do care, because there's a cute tech in the room, you have that horrible blue hat thing over your head and the hospital booties and the mumu (sic?) hospital robe is not helping your chances. Well, there was no chance anyway, but still...then you're on the table having things stuck to you and strapped in and it's all well and good because they're starting to sedate you and you're not having a care in the world. You feel like you could get up and walk out of there towards freedom just the way you are--much like Barbara Streisand at the end of "Nuts". Only there's still a receptor in your brain stopping that from happening. Then you're out but then you're back! And the OR is hopping. I can hear the chatter but not sure what they're talking about and slowly I came to and realized that they wanted to put music on in the OR but it might be Eminem. Hmmm. Okay as long as it isn't Britney or Jessica Simpson massacring a perfectly good Berlin song, I'm fine. One, two, three the port is out you're in the recovery room being hooked up to the final monitors of the day. Yay! But you know what is always inevitable with me. They always forget to take off one of those stickies. Always. So today as I was changing, there was one last sticky thing, which I don't mind them taking off when I'm feeling no pain, but now I'm feeling all the pain and it just sucks ripping it off your skin. But now it's time for lots of water, good ER reruns, sleep and some sympathy. And the port is GONE!
And then the waiting. I'm convinced that if I added up all the times I've waited in the past nine months, I could get a whole three days back. Walked into the back room ; my mother came with me. She's a nurse at that hospital, so everyone addresses her instead of addressing me. Half the time they think I'm 16. It's actually really annoying. Not that I mind my mother speaking up and giving information that I may have left out, but I do mind when they speak with her instead of me as if I'm incapable of giving an accurate recount of my health history. But eventually I tell them to please direct their questions to me and they respect that although they do sometimes think it makes me a little difficult.
Then you have to take the pregnancy test. Now, since all that has happened to my body, they tell me my chances for getting pregnant at some point in the future may be the same odds as the Bills winning a superbowl. However, and without fail, every time they hand me the illustrious cup to pee in, a nurse must tell me the story of how her friend/sister/neighbor/cousin/coworker/friendssister'sneighbr'scousin'scoworker also had cancer and low and behold now she's got three kids. It's very sweet; but funny because everyone does it. Plus at this point in time I'm like--uh, no kids is fine by me!
Then the inevitable IV for the anesthesia to come later. I always tell my mother she can not come to recovery until I am completely coherent. I do not need her asking me about whatever questions she has about my teenage and early college years. Or now even. Not that she would, but I would think that it would be tempting for a parent to find out exactly how many parties were held in their home. I remember one time my friend L and I both told our parents we were staying with the other one for a week. And then both sets of parents went away. I'm lame and wouldn't let anything happen to their house but sure had fun with the freedom at L's house. :-) Well, she didn't even need to ask me under anesthesia. She could just read this.
Then you walk down the hallway. Now you only have those horrid hospital robes on and you have to take off one of them. So trying to maintain your dignity is a little hard, clutching the back and lying down on the table to make sure nothing is showing. Because in five minutes while you might be lit up like a Christmas tree and not care, at that moment you do care, because there's a cute tech in the room, you have that horrible blue hat thing over your head and the hospital booties and the mumu (sic?) hospital robe is not helping your chances. Well, there was no chance anyway, but still...then you're on the table having things stuck to you and strapped in and it's all well and good because they're starting to sedate you and you're not having a care in the world. You feel like you could get up and walk out of there towards freedom just the way you are--much like Barbara Streisand at the end of "Nuts". Only there's still a receptor in your brain stopping that from happening. Then you're out but then you're back! And the OR is hopping. I can hear the chatter but not sure what they're talking about and slowly I came to and realized that they wanted to put music on in the OR but it might be Eminem. Hmmm. Okay as long as it isn't Britney or Jessica Simpson massacring a perfectly good Berlin song, I'm fine. One, two, three the port is out you're in the recovery room being hooked up to the final monitors of the day. Yay! But you know what is always inevitable with me. They always forget to take off one of those stickies. Always. So today as I was changing, there was one last sticky thing, which I don't mind them taking off when I'm feeling no pain, but now I'm feeling all the pain and it just sucks ripping it off your skin. But now it's time for lots of water, good ER reruns, sleep and some sympathy. And the port is GONE!
Since I basically am recapping my entire eight months with cancer, but things that are relevant are happening now, this is my break from the past and to talk about tomorrow. I am getting my port out. I am really excited about this. People told me to keep it in for months, maybe even years, because “just in case”. And for a while, I thought this was a good idea. But then it occurred to me. Why would I keep it in “just in case”? Just in case what? I got cancer again? Because that could never happen. And I’m putting all my eggs in one basket and saying it’s not. And then if I keep it in, I’m allowing for the notion that it could be a reality again. Well, in my eyes anyway. And I just don’t want to do that. I don’t want to let it be something hanging over my head. I don’t want to have to go to the hospital every six weeks to have it flushed for the next X amount of years. I don’t want to have to worry about bathing suits or dresses or shirts that show off this bump under my skin. I don’t want the last remnants of me being sick to be something I carry around with me for awhile under the assumption that I am going to get cancer again. I’m prepared for that event should it come darkening my doorstep, and if I do relapse it’s going to be a whole new set of issues anyway. So for now, I’m taking the damn thing out and that’s that. Apparently it’s supposed to be a ten minute ambulatory surgery, but I have to go into the dreaded operating room, get put under, wear that stupid plastic cap and do all the other things that go along with getting surgery. And universe-willing, it’s going to be the last time I go through this rigmarole for quite some time. Even though it’s a short surgery it doesn’t make it any less scary for me. It’s the same way that I feel whenever I get in a car now. Even though I’ll probably make it there and back in one piece, I’m hyper-aware of all the things that could go wrong: someone could swerve into our lane; someone could be yammering on a cell phone and not paying attention; someone could go too fast; and a myriad of other things. I watch the way people drive and I’m always afraid that if I could get cancer at 24, the chances are good that one of these idiots cutting in and out of traffic could sideswipe me. It’s a horrible way to be. I also have had to stop watching Law & Order because I’m always freaked out about that show. But I digress. I’m also scheduled for 8:30 in the morning. Which means I have to be there at 7:00. Which also means that I'll have less time to stress by the time I get to bed and the time I get surgery done. Which is definately good for someone like me. Crossing fingers and hoping for the best. The remnants of me being sick will be gone!
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